“EB stops me from having a normal life, and that is what I want." A life free of pain is what we all want. For people living with Epidermolysis Bullosa (EB), excruciating pain is something they must live with, every day. Isla is 14 and has Recessive Dystrophic EB (RDEB). EB affects every part of Isla’s life – the continual blistering causes constant pain and itching as well as severe problems eating and drinking. There is hope though… Drug repurposing holds the key to unlocking effective treatme
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“EB stops me from having a normal life, and that is what I want." A life …
7.8K viewsOct 25, 2022
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Today marks the start of #EBAwarenessWeek2021, a week dedicated to increasing awareness of the painful genetic skin condition, Epidermolysis Bullosa (EB). EB causes the skin to become very fragile and tear or blister at the slightest touch. There are four main types of EB, ranging from the mildest, in which only the hands and feet are affected, to the most severe, which can have a devastating effect on any part of the body causing lifelong disability and pain. In severe cases, EB can sadly be fa
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Today marks the start of #EBAwarenessWeek2021, a week …
25.5K viewsOct 22, 2021
FacebookDEBRA UK
Today marks the start of #EBAwarenessWeek2024, a week dedicated to increasing awareness of the incredibly painful genetic skin condition, epidermolysis bullosa (EB) 🦋 In the most severe cases EB can be very visible and can affect multiple areas of the body, however in other cases such as with EB simplex, (70% of all cases), it can be less visible and affect only certain areas of the body such as the feet. In every case though, EB leads to excruciating pain and can have a devastating impact on t
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Today marks the start of #EBAwarenessWeek2024, a week …
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FacebookDEBRA UK
522 reactions · 51 shares | When eight-month-old baby Albi was born...
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4.3K views · 109 reactions | Join Tom Holland and #TheBrothersTrust in their support of DEBRA and a very special charity show in honour of the inspirational James Dunn! Please go to www.GoFundMe.com/JamesDunnShow for more information and to donate. #FightEB #JamesDunn #JamesDunnShow | DEBRA UK | Facebook
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Work with us
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1.8K views · 53 reactions | Imagine your skin being in constant pain? No one should have to live like this. Our DEBRA President Simon Weston CBE shares Fazeel's and Oliver's stories living with the painful genetic skin condition, EB. Sadly since making this film Oliver has passed away. With your help we can find life-changing treatments to #StopThePain for people living with EB: bit.ly/3TUjoxP Thank you for helping.  #EBAwarenessWeek #EBAwarenessWeek2022 | DEBRA UK | Facebook
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