Bureaucratic hurdles impact real families and children across the country. We heard a moving story about Sadie, who was diagnosed with Sanfilippo Syndrome at just three months old. For degenerative diseases, medical delays mean permanent loss. Chairman Senator Rick Scott held a hearing to confront regulatory delays and give patients like Sadie the chance to live a longer, healthier life with access to consistent, innovative care. | U.S. Senate Special Committee on Aging
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