“EB stops me from having a normal life, and that is what I want." A life free of pain is what we all want. For people living with Epidermolysis Bullosa (EB), excruciating pain is something they must live with, every day. Isla is 14 and has Recessive Dystrophic EB (RDEB). EB affects every part of Isla’s life – the continual blistering causes constant pain and itching as well as severe problems eating and drinking. There is hope though… Drug repurposing holds the key to unlocking effective treatme
5:16
“EB stops me from having a normal life, and that is what I want." A life …
7.8K viewsOct 25, 2022
FacebookDEBRA UK
522 reactions · 51 shares | When eight-month-old baby Albi was born...
0:56
522 reactions · 51 shares | When eight-month-old baby Albi was bor…
16.4K views1 month ago
FacebookDEBRA UK
4.3K views · 109 reactions | Join Tom Holland and #TheBrothersTrust in their support of DEBRA and a very special charity show in honour of the inspirational James Dunn! Please go to www.GoFundMe.com/JamesDunnShow for more information and to donate. #FightEB #JamesDunn #JamesDunnShow | DEBRA UK | Facebook
1:01
4.3K views · 109 reactions | Join Tom Holland and #TheBrothersTr…
4.3K views1 week ago
FacebookDEBRA UK
"I always have a bit of pain everywhere." Did you watch 14 year old Isla Grist on BBC Breakfast? The report showed the harsh realities of life with recessive dystrophic epidermolysis bullosa (RDEB), including speaking to Isla's carers, Jean and Linda, about Isla's dressing changes which can take up to 5 hours. In less than two weeks, Isla's dad, Andy and football legend, Graeme Souness, will be swimming the English Channel as part of a team to raise funds for DEBRA. Please sponsor Graeme's swim
1:30
"I always have a bit of pain everywhere." Did you watch 14 ye…
19.1K viewsJun 7, 2023
FacebookDEBRA UK
Work with us
Work with us
Nov 7, 2024
debra.org.uk
1.8K views · 53 reactions | Imagine your skin being in constant pain? No one should have to live like this. Our DEBRA President Simon Weston CBE shares Fazeel's and Oliver's stories living with the painful genetic skin condition, EB. Sadly since making this film Oliver has passed away. With your help we can find life-changing treatments to #StopThePain for people living with EB: bit.ly/3TUjoxP Thank you for helping.  #EBAwarenessWeek #EBAwarenessWeek2022 | DEBRA UK | Facebook
1:52
1.8K views · 53 reactions | Imagine your skin being in constant pain? …
1.8K views1 week ago
FacebookDEBRA UK
497 reactions · 13 shares | “EB doesn’t stop for Christmas. Your support has already brought hope to families like Darcie’s, but there’s still more to do." Please, if you can, make a donation today and help us reach more families this winter: https://bit.ly/4ikkEaP Thank you for standing with us, and Merry Christmas. 冀 #DEBRAUK #TheLongestNight #EBawareness | DEBRA UK | Facebook
1:32
497 reactions · 13 shares | “EB doesn’t stop for Christmas. Your s…
22.9K views1 week ago
FacebookDEBRA UK
0:07
214K views · 19 reactions | A hassle-free way to make a difference. Don…
216.3K views4 weeks ago
FacebookDEBRA UK
0:28
A little look back over the last 12 months. As 2023 draws to a close…
507 viewsDec 31, 2023
FacebookDEBRA UK
5:34
9.4K views · 320 reactions | "I can only describe EB as like living...
9.5K views5 days ago
FacebookDEBRA UK
1:43
170 reactions · 33 shares | Our Community Support team are her…
7.1K views1 month ago
FacebookDEBRA UK
2:28
1K reactions · 635 shares | "It's the cruellest, nastiest, disease…this i…
45.1K views2 weeks ago
FacebookDEBRA UK
0:39
29 reactions | David Bendor-Samuel has been involved in DEBRA for 2…
522 views2 weeks ago
FacebookDEBRA UK
Our Trustee Board
9 months ago
debra.org.uk
0:36
🌟 Join us in congratulating Isla Grist who has been awarded Pride of Sc…
4K viewsJun 22, 2023
FacebookDEBRA UK
0:24
2.9K views · 81 reactions | We are coming to the end of...
883 views3 weeks ago
FacebookDEBRA UK
0:19
It was another early start on the beach in Dorset for #TeamDEBRA …
3K viewsJun 9, 2023
FacebookDEBRA UK
7:06
1.3K views · 63 reactions | “I can sit in my bed and sulk about it or...
1.4K views1 month ago
FacebookDEBRA UK
0:09
14K views · 185 reactions | ⏰ Set your reminders! Graeme and Isla …
4.3K views2 weeks ago
FacebookDEBRA UK
2:37
⏰ Set your reminders! Graeme, Isla and Andy Grist will be on the BB…
4K viewsMay 21, 2023
FacebookDEBRA UK
0:11
Got fashion in your wardrobe that no longer fits your style, or home…
81.8K views2 weeks ago
FacebookDEBRA UK
0:13
Debra Messing leaves little to the imagination as she poses TOPLESS
Nov 1, 2020
Mail OnlineNatasha Hooper
5:47
Liverpool legend will swim Channel for a second time for charity
1.4K views10 months ago
YouTubeSky News
4:30
7.1K views · 208 reactions | "Graeme. Thank you. All my love a…
7.2K views1 week ago
FacebookDEBRA UK
1:24
For Jasmine Ritchie, every day is a challenge. She has a rare skin con…
44K views4 months ago
FacebookGood Morning Britain
Debra Name Meaning, History & Popularity: A Comprehensive Guide
7 months ago
momjunction.com
1:57
64K views · 2.6K reactions | Watch as The Countess of Wessex officia…
64.4K views2 weeks ago
FacebookThe Royal Family
9:11
Wart On Debra's Head Wont Stop Growing! | Dr. Pimple Popper
651.1K viewsJun 19, 2022
YouTubetlc uk
4:48
2.8M views · 10K reactions | Happy Birthday to Patricia Heaton! Here …
2.8M views1 week ago
FacebookTV Land
11:53
Graeme Souness CBE takes on his biggest challenge yet for DEBRA UK
3.2K views10 months ago
YouTubeDEBRA UK
See more videos
Static thumbnail place holder