Libra Nieves on Instagram: "This video shows Lee at just 6 months old during one of his early medical episodes a seizure that left him completely limp, a condition known as hypotonia, or “low muscle tone.” Hypotonia can affect posture, strength, balance, and movement. In Lee’s case, it was one of the first signs of a complex and rare medical journey that was just beginning. Lee was eventually diagnosed with a combination of rare neurological and genetic conditions, including Norrie Disease, whic